Monday, April 2, 2012
My life goings on-Feeling more hopeful
Since I had my second opinion last Tuesday I have done alot of research on my son's disorder. He actually has a chance to live. He will probably have a lot of physical and mental disabilities. I joined a support group of other moms with children that have the disorder. They have given me hope that Castan will be ok. This disorder is very rare. Full blown Triploidy only happens in 2% of pregnant women. Castan has Mosaic Triploidy. There are only 41 cases of Mosaic including mine in the world. I have been talking to some of the moms and have started to prepare myself for a long road. My main worry is the way my daughters will handle it. My older 2 have dealt with the loss of their first brother so they already know what might happen. My 2 year old doesn't understand at all. She just can't wait for her brother to get here. Just going to keep hoping that Cas will be ok.
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I hope that your kiddo's find ways to cope with the disorder that you baby will have. I have two healthy children of my own and i wouldn't even know where to begin trying to explain that situation to them. I hope the best for you and hope that things work out for the best that they can.
ReplyDeleteThanks. My 2 oldest understand for the most part. It's just my baby I worry about. But I think if she grows up with him she will be ok.
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